Thursday, July 8, 2010

XL-184

The 4th of July celebration was very busy. We were able to spend time with many families. It was hard getting back into the swing of work on Tuesday.

Tom has been on the XL-184 drug for a little over a week now. He has been very good about fasting before and after the 10:00 am hour of taking the pill. The first couple of days he had a feeling of nausea and was wondering if it was just in his head. He is now experiencing more severe side effects. We can only assume that this means he is on the drug and not the placebo. He did have to call Henry Ford today to discuss the side effects. If they continue to worsen they will put him on some pain medication. Tom received the Calcitonin results today. He is higher than ever with the new count at 1306. It will be interesting to see if the count will go down. In reading up on this drug, this will be monitored closely with the physicians.

Tom will be going back to Detroit on July 14 for another check up. I am able to accompany him this time and will be able to see the "other" hospital where he spends his days away. I can't imagine him doing all this and trying to work at the same time. The days of him feeling guilty about not working have come to an abrupt end.

Thank you to everyone who has given us kind words of encouragement & help once again. To my friend with the gift card, I will certainly enjoy a latte next week and "try" to relax anyway! I don't know how I would get through all this without my support so that I can focus on supporting my husband.

"Be glad for all God is planning for you. Be patient in trouble, and prayerful always" Romans 12:12

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